Supporting patients with Chronic Spontaneous Urticaria (CSU)
1st October was World Urticaria Day and I am delighted to be supporting the introduction of a new App that will help patients with Chronic Spontaneous Urticaria (CSU) manage their condition. SymTrac™ HIVES is a free iPhone App that enables people to track the severity of symptoms and the impact on their life over time. The data recorded can be viewed in easy-to-read progress trackers and shared with healthcare professionals to enhance consultation time and support decision making. Funded by Novartis Pharmaceuticals UK Ltd and co-developed with a leading national charity, Allergy UK, SymTrac™ HIVES allows users to make the most of their vital consultation time by providing a clear picture of how their symptoms have changed since their last appointment.
You may not be familiar with CSU but you may recognise the red, itchy hives, a form of rash that is also known as nettle-rash, wheals or welts. These hives appear without warning and to be classified as chronic, last at least six weeks and can suddenly reappear after having cleared. CSU affects between 318,000 – 630,000 people in the UK; that is around 0.5 – 1% of the population, a similar number to those living with heart failure in the UK. Women are twice as likely as men to be diagnosed and usually in their most productive years, aged 20-40. The triggers for CSU are unknown making life unpredictable with far reaching effects such as sleep deprivation, depression and social isolation. A recent report, The Wheals of Despair, revealed the devastating impact CSU has on people’s lives:
* a quarter had missed work once a month due to their symptoms
* 56% had no control over their symptoms
* 9 out of 10 had their sleep affected
* 46% were unable to take part in usual social activities.
The following links provide more information
https://www.allergyuk.org/skin-allergy/urticaria-and-angiodema (contains link to the app)
hives/id978657684?mt=8 (the App store page for the app)
http://www.novartis.co.uk/symtrachives.shtml (Novartis’ webpage on the app)